Our journey began with a routine ultrasound anatomy appointment. My husband and I waited with anticipation to find out the sex of our little one, ecstatic to share the news with our family the following day as we would be celebrating our daughter's first birthday. It would be the perfect opportunity, having everyone together, to share the exciting news. Our hearts bubbled up with elation only to be pierced by grave news as soon as the doctor came in shortly after the ultrasound to share with us her findings. She noticed cysts in the brain, medically termed as choroid plexus cysts. She went on to explain that it could mean one of two things--either our baby is completely normal and that the cysts would eventually dissolve on their own or that it could be linked to a chromosomal abnormality. My mind started racing while time seemed to slow down to a brief halt. The last words I remember her saying was that she would like for us to return for a follow-up ultrasound. My husband and I walked out of the room that day with a heavy heart, trying to digest the large pill we were forced to swallow. The car ride home was a long and quiet one. What should we say to the rest of the family that is anticipating good news? We agreed at that moment not to burden them with information that wasn't certain and final. Instead, we chose to share what we did know--that we were having a little boy! What my husband and I were choosing to do was trust God. There is a scripture that I wrote on an index card attached to Judah's ultrasound photo. I mounted it on the glass pane in front of my kitchen sink to serve as a reminder that God is good in spite of our circumstances that tempt us to question otherwise. It reads, "I would have lost heart unless I believed that I would see the goodness of the Lord in the land of the living. Wait on the Lord; be of good courage, and He shall strengthen your heart; wait, I say, on the Lord!" (Psalm 27:13-14)
Waiting on Him is what I did for the latter half of my pregnancy. And supernatural rest and strength I did find even as I walked down every path of "what if" scenarios I could fathom in my feeble mind. Each doubt was met with a confident declaration--"even so, Lord, thy will be done!" And truly it was well with my soul. I remember going to a Tim Hawkins concert just days after receiving the news concerning our Judah. I look back now on that evening with a smile, delighting over God's handiwork. In addition to providing us an escape for a few hours of comedic relief, I had the opportunity to hear one of our favorite stand-up comedians' testimony. When his wife was battling cancer, he re-purposed an old Eagles song, replacing it with his own lyrics. The take away verse was this, "I've got a peaceful, easy feeling. I know He won't let me down. 'Cuz I'm already standing on solid ground". That lyric replayed in my mind for several months to come as the roller coaster ride of emotions I was on made me feel at times that I would crumble and crack in an instant. But, as I'm learning, my feelings never have the final word. Jesus does. And His word says, "'Though the mountains be shaken and the hills be removed, yet my unfailing love for you will not be shaken nor my covenant of peace be removed," says the LORD, who has compassion on you'" (Isaiah 54:10). I may be trembling like a leaf in the face of uncertainty. My feet may feel like they are failing beneath me on sifting sand, but the truth is I am already standing on the Rock of Jesus Christ. He is the only One constant in this life that is ever-changing. In the ebb and flow of setbacks and setups, His word never fails. He is the anchor for a wandering soul such as mine. And what I would soon find is that He is the very anchor that holds us tight even when we let go of Him and surrender to our doubts, fears, and insecurities. When we feel we might be overtaken by the crashing of the waves, it is in the letting go, being emptied of self, recognizing our helplessness and need for Him that then and only then do we find strength. And the strength I am referring to is not some supernatural power to shut the mouths of lions or to stand in the fiery furnace uncharred (though God is able to do such things). It is much simpler and perhaps more profound than that. It is grace for the moment. Just enough manna to sustain us. Just enough peace to make it through one more doctor visit met with bad news, one more rejection, one more setback. In the minor victories, in the major defeats, strength is knowing He is enough.
Fast forward to several months later. We welcomed our little lion cub into this world on December 27, 2016. Aside from being jaundice, he was the epitome of health it seemed until a few weeks after his birth. I was laying beside him and noticed he was breathing rapidly, grunting and panting for air. I brought up my concerns about his abnormal breathing to the pediatrician, but he didn't seem to be alarmed until he ran his stethoscope over Judah's heart at his one-month well visit. He finished his evaluation, grabbed a pen and paper, and wrote down a list of cardiologists that he recommended we call to schedule an appointment. What he heard was a heart murmur. For infants Judah's age, a heart murmur is not uncommon and is most often innocent. Nonetheless, my heart sank under the weight of uncertainty. Yet again, I was met with another opportunity to affirm what I know to be true--God knit this little boy together with His bare hands and knows every detail concerning him, including the structure and function of his precious pint-sized heart. As soon as I returned home, I followed the advice of the doctor and scheduled the first cardiologist appointment available.
About a week later, my husband and I, along with Judah and our other two kids found ourselves in a dim room where an echocardiogram was performed on our son. The tension was high as Judah was screaming on the examination table and Izzy, our then 18-month old, was running around like she escaped the zoo. My husband and I had already been running on zero sleep as Judah was a very irritable baby. His fussiness we attributed to normal newborn issues. The pediatric cardiologist glossed over Judah's chest with the wand of the ultrasound machine and spoke very gently to us with words that pierced through all of the chaos. He told us that he found a 10 mm sized hole in the lower chamber of the heart, what is medically referred to as VSD. He also found a hole in the upper chamber, medically termed ASD. An article I found from the American Heart Association explains his condition as such, "Normally, the left side of the heart only pumps blood to the body, and the heart's right side only pumps blood to the lungs. In a child with VSD, blood can travel across the hole from the left pumping chamber (left ventricle) to the right pumping chamber (right ventricle) and out into the lung arteries. If the VSD is large, the extra blood being pumped into the lung arteries makes the heart and lungs work harder and the lungs can become congested". If left uncorrected, this can cause permanent damage to the lung blood vessels. To sum it all up, Judah was born with a congenital heart defect. The doctor drew up a diagram of the heart to give us a visual, but I couldn't see past my tears and his voice was drowned out by the pounding of my own heart. I peered up at my husband who was holding our little lion cub in the crook of his arm, bouncing him up and down to console him as tears were streaming down his face. He looked at me, wiped his tear-stained cheeks, and then gazed up at the ceiling tiles as if he could see right through them into the heavens and declared, "We will choose to trust God". These words tasted bitter-sweet, reminiscent of the cup that Jesus drank the night He was betrayed. The doctor responded, stealing the words right out my mouth, "Yes, but sometimes it is a hard thing to do".
That afternoon when we returned home, we received a piece of mail that would catapult us into the arms of a very supportive and proactive team of doctors who would care for our Judah. It was a magazine from the University of MD addressed to the former owner of our home. Inside we found an article about a gentleman who grew up with a congenital heart defect similar to Judah's. It explained his condition in more detail. We took a leap of faith and contacted the University to schedule an appointment with one of their top cardiologists on staff. It was a shot in the dark, but the Lord's hand guided us right where we were to be, and days later we found ourselves in their children's heart unit.
Sparing all of the details, Judah would be monitored regularly, and with each visit, his health was deteriorating. At another routine cardiology appointment, we were met with more detrimental news that Judah also had an obstructed valve. I felt my heart being crushed under the weight of more bad news. Typical for infants and children suffering with Judah's condition, he stopped gaining weight and so therefore the doctors chose to intervene, admitting him into the hospital. There he would be administered three different drugs to better regulate the function of his heart and lungs. About a week later, we were sent home with hopes we could push back any talks of surgery provided his weight was on the incline. I had prayers being lifted up by people who didn't even know Judah, begging God on our behalf that our little warrior would receive the nourishment he needed to gain an ounce a day. I dreaded the mornings and evenings when I had to squeeze the meds into the side of his cheek, hoping he wouldn't gag up what he ate, setting him back further behind on the calories he needed for the day. It was an uphill battle and we were winning until about two weeks later when the meds stopped working and Judah was back to square one. The cardiologist explained at this point there was nothing medically he could do. Judah had to have surgery. These were the very words I dreaded. All this time, I was believing that God could perform a miracle. The question was not if God was able, but if He was willing. Just as the man with leprosy declared in faith to Jesus, "Lord if You are willing, You can make me clean" (Luke 5:12), I begged and pleaded with God to miraculously bind up the holes in Judah's heart. But, that was not His plan. His answer this time was no. I read a scripture earlier that week which further confirmed God's plan for Judah. It is an obscure scripture found in Isaiah 54:16 that reads "Behold I have created the blacksmith who blows the coals in the fire, who brings forth an instrument for his work". What God was showing me through this verse is that He has bestowed knowledge and wisdom upon man to do the very thing I was asking of him. He has skilled the hands of our surgeon to mend the heart of our son and countless others in his condition. He would bring about healing, just not in the way that I wanted it. It would be for His glory that we would walk through the fire hand-in-hand with Him.
The days leading up to the surgery and thereafter were a nightmare. I wish I could tell you that I walked in the doors of that hospital with superhuman strength, that God granted me supernatural peace and rest. But, I didn't feel peace and I didn't feel rest. I was exhausted, watching the nurses stick a feeding tube down my son's throat while comforting him over my shoulder when he would vomit up what his little tummy couldn't hold. I held down squirmy arms and legs as they were pricked countlessly because his veins were too tiny to get a line in. I watched helplessly as our little fighter was wheeled out of our room into the OR, that image still ingrained in my mind, and my husband and I guided into a waiting room as small as a fish bowl where we were instructed to sit tight and listen for a phone call updating us hourly on the progress of the surgery. I felt so much anguish I could scream! But, is this not what Jesus felt in the garden when He knew His fate and willfully walked the blood-stained road set before him? He felt my anguish to an extreme that droplets of blood rolled down His face. His soul was overwhelmed with sorrow to the point of death as the scriptures state in Matthew 26:38.
I am beyond grateful to say that our little lion cub had a successful surgery! In the days and weeks thereafter, Judah, who was once an infant medically categorized as "failure to thrive" made up for all of his weight loss exponentially so much so that he rose to the 90th percentile! I give many thanks to my sisters who bombarded the throne room of God, pleading for his physical healing on our behalf. You are the Aaron in my story when I, like Moses, grew too weak to lift up my hands. You are like the friends of the paralyzed man, making every effort to bring him before the feet of Jesus. There were many times especially in the days leading up to Judah's surgery and the days thereafter where I felt so paralyzed by fear. Thank you for faithfully carrying me back to my Savior. I also would like to thank the family and friends who loved on us practically, whether it be through meals or looking after our two other kids. Thank you, both sets of grandparents, for being readily available when we needed you. Thank you, mom and dad, for running to my rescue when the pressure was just too great so I could cry it all out in your arms. I thank the friend who decorated our hospital room with bible verses so that no matter where I looked, I would be met with God's promises. Thank you to all who took time out of your busy day to come sit beside us, shoot us a text, or give us a call to encourage us in some way. And thank you to my husband, who modeled for me what I long to be, immovable, unshakeable, unwavering in faith. You were my rock through one of the most trying times of my life and I know it is because you are firmly rooted on the true Rock--Jesus Christ. Thank you, thank you, thank you!
The last piece of this story I will share with you took place just days after Judah's surgery. A woman stopped into our room with a red tote filled with goodies to help make our stay a little more comfortable in the hospital. After she left, my husband and I rummaged through the bag and found a little stuffed lion with a stitch over his heart. That stuffed animal was the perfect gift for our little lion cub. Only God would have known that! My eyes filled up with tears as I felt seen and so cared for by God in that moment. I was reminded that no matter how far I run away from Him, surrendering to fear, God never turns His back on me. He still loved and cared for our Judah so well and He still loves and cares for me. I have witnessed this verse to hold true, "If we are faithless, He remains faithful; He cannot deny Himself" (2 Timothy 2:13). As He was mending the heart of our son, He was mending mine just the same.
During all of my struggles with doubt and fear, wrestling with God in angst, my husband sent me a song written by MercyMe, titled "Even if". As much as it broke my heart to sing the lyrics, God gave me the strength to do so. The chorus goes:
"I know You're able and I know You can
Save through the fire with Your mighty hand
But even if You don't
My hope is You alone"
God denied my prayers concerning how Judah would be healed. But the healing He provided was nothing short of a miracle. Instead, God called me into the fire to prove Himself faithful and refine my faith along the way (ref 1 Peter 1:7). It is in facing the sting of death that I found Him to be the healing balm that alleviates the sting. In my wrestlings with God, trudging forward with a limp, He is my crutch. When we are broken to pieces, He fills every gap of our aching hearts with Himself. And that is the greatest miracle of all, learning through the fire of adversity, through any and every trial, that He is enough.
These are photos of Judah leading up to the surgery, afterwards, and now! We praise God for His abundant grace and mercy!






